Lupus patients find
that having lupus can be a lonely and frightening
experience. While lupus is common, few people know much
about it, its symptoms or how to deal with a patient
suffering from lupus. If you need of support and
understanding, or have questions regarding lupus or
anything pertaining to lupus, a support group or online
chat room or forum is a great place to start.
Finding a good support system is crucial to the overall
well-being of people with lupus. Family members and
loved ones are also encouraged to participate in a lupus
support group or forum. By doing so, they to gain a
better understanding of lupus and how they can help and
support the person with lupus.
People with lupus can gain and offer insight by
supporting and encouraging others with lupus. At a lupus
support group or online chat room or forum, people share
their personal experiences with different drug therapies
that they might have tried, pain management and coping
with every day life.
Help Your Body Heal Itself
Most people in a
lupus support group, forum or chat room expect and
tolerate whining. After all, these are places to go for
support, a shoulder to cry on or a means to find coping
techniques. . But in addition to finding emotional
support, lupus forums and support groups are great
places to find new research articles are posted as well
as clinical trials for new treatment.
It is important to keep in mind that the people involved
in a lupus support group, forum or chat room typically
are not health professionals. The advice offered in a
lupus support group, or online forum or chat room should
not be construed as medical advice cannot give medical
advice.
The lupus support groups, forums and chat groups listed
are resources for group support. If you find that these
lists have change, or to add information about a lupus
support group, chat room or forum, please email
info@arthritis-pain-cure.com.
Lupus Online Support Group, Chat Room and
Forum Listings:
Butterfly and the Wolf: A mutual support bulletin board
at the Coffeerooms. Friendly people who understand what
you're talking about.
w3pg.com/forums/wellness/lupus/
We Have Lupus: Online support community for lupus
patients and their families.
wehavelupus.com/
Lupus Support Group Southport UK: Details about a
Physiotherapist run group for people with this disease,
family and friends at UK Hospital. Includes a few links
and contact details.
geocities.com/angelica4sg/lupus.html
The Lupies Support Group: Where patients, family,
friends, and those awaiting their diagnosis, can find
others for support and friendship.
groups.yahoo.com/group/lupies/
Discover Lupus Relief
The Lost Lupies:
Support group includes a mailing list, chat room,
directory, photo album, and homepage.
groups.yahoo.com/group/TheLostLupies
Lupus Community Message boards and chat dedicated to
sharing information, offering support, and strategies to
better cope. Community moderated by patient volunteers.
healingwell.com/community/?f=29
HealthBoards.com: Lupus Message Board: Located on the
HealthBoards.com website. Only registered users may
post.
healthboards.com/cgi/forumdisplay.cgi?action=topics&number=77
WebMD: Lupus: Newly Diagnosed: This message board is
part of Lycos Health with WebMD. Participants must
register to post messages (you may read messages without
registering boards.webmd.lycos.com/roundtable_topic/1130
WebMD: Lupus: Support Group: This message board is part
of Lycos Health with WebMD. Participants must register
to post messages (you may read messages without
registering)
boards.webmd.lycos.com/roundtable_topic/86
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