One of the most
important aspects of managing lupus syndrome is the ability to control the
disease and prevent a lupus flare. Sun exposure,
excessive fatigue, uncontrolled stress, poor diet or
lifestyle habits are factors that may trigger a lupus
flare and should be avoided.
Lupus syndrome often follows the same pattern with the
same combinations of symptoms reappearing. Watch for a
recurrence of the
lupus symptoms that you experienced when
your disease started.
Symptoms
for lupus flares include:
-
Sores on the roof of the mouth
-
Unexplained skin
rash anywhere on the body
-
Hives
-
Sores on the
skin
-
Persistent
fatigue
-
Persistent
weakness
-
Aching all over
-
Unusual headache
-
Painful and/or swollen joint(s)
-
Stiffness of the
joints upon waking in the morning
-
Fever
-
Loss of appetite
-
Involuntary
weight loss
-
Chest pain which
increases with breathing
-
Shortness of
breath
-
Lupus hair loss
-
Nose bleeds
-
Nausea or
vomiting
-
Recurring or
persistent abdominal pain
-
Blood in the
urine
-
Increased
swelling of the feet and legs
-
Puffy eyelids.
With experience and
knowledge, the patient can identify the early warning
signs of a lupus flare and take corrective measures to
treat the lupus flare up early before it has had time to
gain momentum. The National Institutes of Health
prepared a lupus syndrome fact sheet that covers many
aspects of a lupus flare. Below is a reprint;
Lupus Syndrome Patient Information Sheet #4, Preventing a Lupus
Flare -
From the National Institutes of Health.
Your doctor has put together a treatment plan that is
designed specifically for you and your lupus. This
probably includes physical and emotional rest,
aggressive treatment of infections, good nutrition, and
avoidance of direct sunlight and other sources of
ultraviolet light. Your doctor may have also prescribed
medications to control disease symptoms and other health
problems that you might have. One of the most important
ways you can help yourself is to understand your
treatment plan and the things you need to do to keep
your disease under control.
Sometimes, despite the treatment plan and your efforts,
you may experience a lupus flare. A flare is a worsening
of symptoms that signals increased disease activity. A
variety of factors can cause a flare, and you should
contact your doctor immediately if you suspect a flare
is developing. The doctor will evaluate your condition
and take steps to control the seriousness of the flare.
He or she will also reevaluate your overall treatment
plan and make any needed changes.
Warning Signs of a
Flare:
_ Increased fatigue.
_ A new or higher fever.
_ Increased pain.
_ Development or worsening of a rash.
_ Upset stomach.
_ Headache or dizziness.
_ Development of symptoms you haven�t had before.
What Triggers a Flare?
A flare can be triggered by one factor or a combination
of factors. The most common are:
_ Overwork or not enough rest.
_ Stress or an emotional crisis.
_ Exposure to sunlight or other sources of ultraviolet
light.
_ Infection.
_ Injuries or surgery.
_ Pregnancy or the time right after the baby's birth
(the postpartum period).
_ Sudden stopping of medications for lupus.
_ Sensitivities or allergies to items that you put on
your skin, such as hair dye, hair permanent solution,
makeup, and skin creams.
_ Certain prescription drugs.
_ Over-the-counter medications, such as cough syrup or
laxatives.
_ Immunization.
Caring For Yourself.
Learn to recognize the warning signals of a flare and
tell your doctor about them.
_ Maintain your physical health. Be sure to visit your
doctor regularly, even if you are feeling well. Schedule
regular dental, eye, and gynecological exams.
_ Get enough sleep and rest. Be flexible with your
schedule of daily activities.
_ Try to limit your stress. Because this may be hard to
do at times, consider developing a plan for dealing with
potentially stressful situations. Develop a support
system that includes family, friends, medical or nursing
professionals, community organizations, and support
groups. Remember, it helps to talk to someone when
you�re feeling stressed.
_ Participate in a well-planned exercise program to help
you maintain physical fitness and reduce stress.
_ Eat a healthy diet.
_ Limit your exposure to the sun and other sources of
ultraviolet light, such as fluorescent or halogen
lights.
_ Tell your doctor right away about any injury, illness,
or infection or if you do not feel well in any way.
_ Delay elective surgery (including dental surgery and
teeth pulling) until your lupus is under control or in
remission.
_ Lupus may cause problems for a pregnant woman and her
baby. As a result, women with lupus should carefully
plan any pregnancy. Do not stop using your method of
birth control until you have discussed the possibility
of pregnancy with your doctor and he or she has
determined that you are healthy enough to become
pregnant.
_ Talk with your doctor before you stop taking any
prescribed medications.
_ Check with your doctor or nurse before taking any
over-the-counter medications.
_ Be careful when trying any over-the-counter
preparations used on your skin or scalp. First,
determine whether you have a sensitivity or an allergy
to it. Put a small amount of the preparation on the
inside of your forearm or on the back of your ear. If
any redness, rash, raised areas, itching, or pain
develops, do not use the preparation.
_ Be aware that certain prescription drugs may trigger a
flare. Tell any doctor, nurse, or health care
professional you visit that you have lupus. Also tell
your lupus doctor or nurse if any new medications have
been prescribed for you.
_ Be sure to check with your lupus doctor before
receiving any immunization. Routine immunizations,
including those for the flu and pneumonia, are an
important part of maintaining your health, and you
should get them if your doctor approves.
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