Few people are prepared for dealing with
a family member with fibromyalgia. An online support
group or chronic fatigue and fibro classes are great
places to start.
Fibromyalgia patients find that having fibromyalgia can
be a lonely and frightening experience. While
fibromyalgia is very common, few people know much about
it, its symptoms or how to deal with a patient suffering
from fibromyalgia.
If
you are in need of support and understanding, or have
questions regarding fibromyalgia or anything pertaining
to fibromyalgia, a support group or online chat room or
forum is a great place to start.
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Finding a good support system is crucial to the overall
well-being of people with fibromyalgia. Family members
and loved ones are also encouraged to participate in a
fibromyalgia support group or forum. By doing so, they
to gain a better understanding of fibromyalgia and how
they can help and support the person with fibromyalgia.
People with fibromyalgia can gain and offer insight by
supporting and encouraging others with fibromyalgia. At
a fibromyalgia support group or online chat room or
forum, people share their personal experiences with
different drug therapies that they might have tried,
pain management and coping with every day life.
Most people in a fibromyalgia support group, forum or
chat room expect and tolerate whining. After all, these
are places to go for support, a shoulder to cry on or a
means to find coping techniques. . But in addition to
finding emotional support, fibromyalgia forums and
support groups are great places to find new research
articles are posted as well as clinical trials for new
treatment.
It
is important to keep in mind that the people involved in
a fibromyalgia support group, forum or chat room
typically are not health professionals. The advice
offered in a fibromyalgia support group, or online forum
or chat room should not be construed as medical advice
cannot give medical advice.
The fibromyalgia support groups, forums and chat groups
listed are resources for group support. If you find that
these lists have change, or to add information about a
fibromyalgia support group, chat room or forum, please
email
info@arthritis-pain-cure.com.
fibrohugs.com:
A place where persons with fibromyalgia can find
understanding, knowledge, and support in their daily
battle with this painful disease.
fms-cfsfriends.com/index.html: Offers upbeat
conversation, information links, research of
fibromyalgia, FMS, CFS, ME and chronic pain, including
back pain.
Get Rid of
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AFFTER.org: Patient Advocate Organization with On-Line
support group: Information about fibromyalgia, with
access to a free on-line support group to share
information with others.
fibromyalgiachat.com: Fibromyalgia chat room and message
board: Chat with others who have fibromyalgia, learn
from them what has helped them, post messages, ask
questions...
tigihiggins.tripod.com/: We Are FMily Online
Fibromyalgia Support: A place where people are
comfortable to visit often, finding a place of peace and
serenity.
fibromyalgia.md: Open Discussion Forum for those with
Fibromyalgia and those interested.
fibro-friends.org: Information on fibromyalgia syndrome
(FMS), chronic fatigue syndrome (CFS, CFIDS),
myosfascial pain syndrome (MPS) plus forums for sharing
experiences, treatment methods, and coping techniques.
geocities.com/moonotter3/fibromyalgia.html:
Fibromyalgia news updates, forums for sharing personal
experiences, a support group and resource links.
guaifenesin.com/groups.htm: This is an entry point for
many just finding out about the guaifenesin protocol. It
serves as a place where links to the other guai sites
can be found and where newbies to the protocol can get
started.
forums.delphiforums.com/FMFRIENDS/start:
Our purpose is to lend support, provide information,and
develop friendships with people who have fibromyalgia
and other chronic pain, as well as their family and
friends.
communities.msn.com/FibromyalgiaHelp: Message board with
friendly people trying to help you cope with everyday
living.
geocities.com/eviee55: Another place to build
friendships, share information, concerns and find
support from your Friends in Fibro.
groups.yahoo.com/group/fibro_friends4fun: A support
group that emphasizes humor and fun to help us deal with
this disease.
c.1asphost.com/fibrom/: This site is for people
diagnosed with fibromyalgia, chronic fatigue syndrome,
myofascial pain syndrome, and other chronic pain
syndromes and illnesses and their families.
groups.msn.com/FibromyalgiaSiteForInformation: This
site's goal is to supply users with up to date and
relevant, credible information on fibromyalgia and
chronic fatigue.
fibromyalgia-support.org: A resource for those wanting
to learn about fibromyalgia or learn how to fight the
disease. Contains over eighty articles on fibromyalgia
and chronic fatigue syndrome.
groups.yahoo.com/group/fibromyalgia_discussion:
Extremely high volume mailing list and discussion group
for those who suffer from fibromyalgia.
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